The Center for Excellence in Care in Neurofibromatosis at UF HEALTH provides comprehensive and exceptional care for patients and families affected with NF. We are designated clinic as a member of the NFCN ( Neurofibromatosis Clinical network). We also members of the NF Foundation and Network.
Hans H Shuhaiber MD , provides the individualized treatment you need if you鈥檝e been diagnosed with this complex and lifelong condition.
At BOB体育, we offer comprehensive treatment and management options for all types of neurofibromatosis, a relatively rare genetic disorder that affects the development of nerve cells and sometimes causes tumors (neurofibromas) to develop in the nervous system.
At BOB体育, our patients benefit not just from a single neurofibromatosis specialist, but from the expertise of an entire team of experts. We do not require referrals, and all of our diagnostic, treatment, and supportive care services are available in a single, convenient location. Through our unique approach, each patient has the advantage of receiving several expert opinions from our neurofibromatosis specialist team in one comfortable and familiar place.
Each neurofibromatosis specialist on BOB体育 multispecialty tumor team has highly focused skills and experience. Consider that:
-Our BOB体育 neurosurgeons and surgical oncologists address nerve tumors with a high level of precision using advanced, minimally invasive surgical techniques, which also allow them to access difficult-to-reach neurofibromas that have developed near-critical nerve pathways.
-Our BOB体育 radiation oncologists and medical oncologists incorporate nonsurgical treatment options, such as chemotherapy and radiation therapy, into highly individualized treatment plans, as appropriate.
- Our BOB体育 supportive care specialists provide a variety of services, including education, counseling, and nutritional support, to help ensure the best possible quality of life for our patients both during and after treatment.
Each neurofibromatosis specialist at BOB体育 is committed to treating, educating, and supporting individuals who have been diagnosed with this uncommon condition.
If you are a patient or family suffering from Neurofibromatosis. Please contact me directly at hshuhaiber@ufl.edu. I am looking forward to personally helping you with the long-life illness of Neurofibromatosis. We are available for your NF needs 24/7. We accept all insurance plans, and we accept patients as well with no insurance. We are running several investigational clinical trials that would help your underlying NF disease.
The purpose of this study is to investigate behavioral and other co-occurring outcomes with EPID(I/Y)OLEX as an add-on therapy in participants aged 1 to 65 years with tuberous sclerosis complex (TSC) who experience seizures.
Please note: Some physicians and practices might not accept a specific insurance plan. Our list is also subject to change, and sometimes that change is not yet reflected in this list. Please contact the practice to confirm that your insurance is accepted. A representative will be happy to assist you.
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