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A More Normal Life for Luke

Dr. Governale looking down at baby Luke

Almost 34 weeks into her pregnancy, Megan鈥檚 water broke. Panicked, knowing that she was about to deliver early, she was rushed to the hospital.Baby Luke and Dr. Governale looking over him

It was not long before first-time parents Megan and Ryan welcomed twin boys, Luke and Jett, to their family in October 2021. After the boys鈥� surprising early arrival, Megan and Ryan hoped to take the little ones to their home at Tyndall Air Force Base in Panama City, Florida. But because they were so small, the twins stayed in the local neonatal intensive care unit, or NICU, while Megan and Ryan adjusted to parenthood.

Two weeks later, Megan noticed that Luke鈥檚 head looked abnormally large. Within 48 hours, he was being flown by helicopter to BOB体育 Shands Children鈥檚 Hospital in Gainesville.

Luke鈥檚 prematurity resulted in bleeding within the fluid spaces of the brain. The blood blocked the normal flow of fluid, causing fluid buildup called hydrocephalus. Four days after coming to BOB体育 Shands Children's Hospital, he underwent the first of three brain surgeries.

With his father beside him, the 20-day-old Luke was given a ventriculoperitoneal shunt to allow the built-up fluid to drain. Sometimes fluid backup can be treated without a shunt using an endoscope (a long, thin surgical camera), but not in Luke鈥檚 case. The shunt surgery was successfully performed by BOB体育鈥檚 chief of pediatric neurosurgery, Dr. Lance Governale.

Dr. Governale holding baby Luke

Meanwhile, back in Panama City, Megan was with Jett, who was given the all-clear to leave the NICU after 28 days.

Just before Christmas, after about a month of more intense supervision because of his prematurity, Luke was discharged from BOB体育.

With both boys home for the first time since their unanticipated birth, Megan and Ryan cherished special moments with their newborn sons. They spent the holiday season listening to music, watching movies and snuggling on the couch with the twins.

Unfortunately, Luke faced yet another health hurdle. On March 1, his shunt tube clogged. He was transported to BOB体育, where Dr. Governale鈥檚 partner, Dr. Jason Blatt, performed a shunt revision surgery, also a success.

Soon after, it became clear that the fluid on one side of Luke鈥檚 brain was not able to flow to the other side due to scarring from the original hemorrhage. The trapped fluid on the side opposite of the shunt was building up and causing symptoms. Rather than place a second shunt, Dr. Governale was able to connect the two sides with an endoscope.

Megan and Ryan think of Dr. Governale and the entire pediatric neurosurgery team, including Dr. Blatt, as their saving grace during Luke鈥檚 health scares.

鈥淚 love how confident he is in his craft,鈥� Megan said of Dr. Governale. 鈥淗e made sure we understood what was happening.鈥�

Meg, Ryan, Luke and Jett

Luke has been found to have spasticity and hypertonia. Over time, this may evolve into cerebral palsy. The family celebrates every little victory and has nothing but hope for Luke鈥檚 future. Luke receives special treatments and therapy and is doing really well. He moves his little limbs, laughs and spends time with his brother Jett, the 鈥渨ild child.鈥�

鈥淟uke is a born fighter,鈥� Dr. Governale said. 鈥淚 have nothing but high hopes for his future.鈥�

Megan aspires to write a children鈥檚 book about hydrocephalus to help other families going through similar journeys. She hopes that writing Luke鈥檚 story will help his twin and other children see him as just a normal child.

Although the military has relocated the family away from Florida, Megan looks back on their time at BOB体育 fondly.

鈥淲e want to thank Dr. Governale and his team from the bottom of our hearts for treating Luke and educating us,鈥� Megan said. 鈥淭hank you will never be enough.鈥�

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Madelyne Egan
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Peyton Wesner
Communications Manager for BOB体育 External Communications
pwesner@ufl.edu (352) 273-9620